Wednesday, August 13, 2008

Brave little boy


Two weeks ago I took Vincent to get some blood work done to be tested to see if he has the same thing that Whitney had. Even though he is developing a lot better than she did we noticed some similarities and just to make sure. Yesterday Travis and I took Vincent to see a specialist that had worked with Whitney and he gave us the test results. Our sweet little Vince does have what Whitney had. Neonatal adrenoleukodystrophy (NALD). Unfortunately there isn't a cure for this. He is taking a multi vitamin and had more blood work done yesterday to see how his iron level is and to see if he has thyroid problems. I can still nurse him but we will have to supplement with a special formula that doesn't have long chains of fat because he can't break them down. I will have to take him to the specialist about every three months so they can keep checking on his thyroids and see if there is anything else he needs. I'm so grateful to have such wonderful Doctors and nurses that take such good care of us. It's nice working with the same group of people that worked with Whitney. I feel so blessed to have such beautiful children and to know that we are a family forever.
They gave this cute little car to Vincent the first time he went and got his blood taken. The second time he went in they gave him this stuffed animal.

14 comments:

Schmidt Family said...

Let us know if there is anything that we can do for you guys. I am so glad that you are working with the same doctors. Then you know how they will handle everything. Our prayers and love are with you.

Jason, Mindi, Porter, and Ellery said...

Hey Travis and Amy, you two are such special people to have Heavenly Father give you these two precious children. I only spent one evening with Whitney, and there was no denying the sweet spirit she brought with her. You are in my thoughts and prayers!

Melody and Lance Jensen said...

O Ree there are not words. . . I'm sorry doesn't cut it. I'm so glad you guys have the gospel. Please let me know if you need anything ever. love you

Malia said...

You are an absolutely amazing family. You will be in our prayers...please let us know if you need anything at all.

Kristen said...

Amy,
I'm so sorry to hear about the test results. It sounds like your working with wonderful doctors who care a lot about your family and will take good care of Vincent.
He is so lucky to have you as his Mommy. You are an amazing mother.
I will be praying for your sweet family. Lots of love... and a big (((hug))).

Christina said...

Know that your sweet little family is LOVED by so many people...amy you are certainly a special daughter of God-you have lived a righteous life which will enable you to get thru these trials-I am in awe of you.
Thank you for keeping us updated-

Meghan said...

We love you. Please let us know what we can do for you. Anytime! What brand of formula? I keep getting checks in the mail that are good on any kind and I remember how expensive it was for Whitney. You are in all of our prayers. Even Sam's!

amber schmidt said...

I'm sorry to hear about his test results. Your family will be in our thoughts and prayers. I'm glad that the dr's you are working with are so great. Let us know if there is anything we can do for you!!

Jon and Sarah Jackson Family said...

There's not much I can tell you that will do you justice. You are both obviously exceptionally special people. I don't know how many people can handle what you have both been asked to handle, but Heavenly Father knows you two can handle it somehow. What special children you have. They, and both of you, must have done something right before earth life. Let us know how we can help. He is so cute Amy. I can't wait to meet him.

Lots of love,

Sarah

Angel said...

I don't know what to say, but I know the Lord is with you and my thoughts are with you too.

Shea said...

he is such a brave little boy--and such a cutie! i really admire you guys and your strength. our prayers our with you!

Claudemir and Corbi Lima said...

Amy and Travis, i am so sorry to hear about vincent! you all are in my prayers and if there is anything that i can do for you please let me know! love you guys. you are an amazing family!

"AIN'T NOTHIN' BUT A GOOD TIME!" said...

We love you guys so much. We have you in our prayers. Your such an amazing family and Vincent is so lucky to have such amazing parents. Let us know what we can do.

dan and linds said...

There are no right words to say, but we want you to know that you are in our thoughts and prayers. Whitney and Vincent are so special, and we know you two are too.